Author: Donna Brown (---.midtn.chartertn.net)
Date: 10-03-02 22:21
Trevor, i have skin sarc. . i would love to get a copy of your paper. I'm not informed enough to make sure i am getting the right tests, i'm sure my Dr. knows very little about sarcoidosis, hes the only 1 i can find in town tho who will even order any tests besides a lung X-Ray. I have not been told to stay out of the sun, just found that out by reading here. I got a terrible sunburn last year from tubing down the river in texas on vacation. I was sick for almost 2 weeks and had terrible headaches which until latley i have never been bothered with. I think now i may have had sun poisoning too.
I feel weak, my feet hurt very badly when i get out of bed in the morning or after sitting for awhile. I have aches and pains all over and dry mouth, dry eyes, sinus problems,always so tired, sleep alot. Cough some and choke easy and have difficulty swallowing sometimes. I had trouble even talking the other day, couldn't form words or put thoughts together. went to the dR. and he just ignored that part, said i had a fever and a mild urinary infection. I think possibly sarcoidosis has caused that also. I know this is not a thing to talk about but now i sometimes cant hold my urine until I get to the bathroom. Never had any kind of problem with that before. I do find that lots of times my dr just sort of ignores what he don't know about and trys to find a reason to give me an antibiotic and send me on my way. Most times i don't even take it... I did try to take the antibiotic for the uninary inf. but the pills were so big they choked me. My arm is sore on the inside too all the way from my shoulder to my wrist. I'm wondering if that could be lymph glands? I know i seem to be rambling on here but I have absolutly no 1 to talk to about this. My family doesn't know anything about it and thinks i should act normally and be like well. I do like my Dr. and I feel like if I take him a paper to educate him he will try to do better. I NEED to be educated too. I have those terrible sweats too, my clothes will be soaked. My memory is awful and i have a hard time thinking and trying to figure stuff out. I feel retarded but i know I have been to college and was pretty smart at 1 time. I just feel like giving up a lot of the time. Please don't publish this paper just send me a copy of your paper and if you want a personal reply. Thank you Donna
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