Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-site, or the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but much of it is now out-of-date.

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

 

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


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 Opioids suggested for refractory arthritic pain
Author: Admin (---.gtecablemodem.com)
Date:   03-16-02 13:04

No sooner had Cher reported that she was being treated for pain in Australia with slow release morphine tablets, than a Press Release crossed my desk from the American Pain Society, which has now endorsed opioids for the treatment of severe pain resulting from arthritis.

Read the Press Release at:
"American Pain Society Releases New Clinical Guideline For Treatment Of Arthritis Pain"
http://www.ampainsoc.org/whatsnew/031502.htm

Both of the major medical organizations dealing with pain have also agreed on joint guidelines for the use of Opioids in Chronic Pain:
"The Use of Opioids for the Treatment of Chronic Pain"
http://www.ampainsoc.org/advocacy/opioids.htm

This document also details how many of the fears associated with the use of opioids have now been put to rest by a decade of their use in treating AIDS patients.

There is a risk of addiction if these drugs are misused, or if you become dependent on them to relieve pain. If anybody is interested in discussing addiction, please start a new thread on that topic - it is an interesting one because many drugs, and particularly prednisone, can create the physical and mental dependancy that we call 'addiction'.

You will note that neither methotrexate and prednisone are on the recommended list of treatments for arthrititic or RA pain. These drugs are (slowly) disappearing from the recommended treatment regimes in most of the Continuing Education that I read. So, if you have tried Vioxx and Celebrex and they have failed to ease your arthritic pain I suggest that you print off these guidelines and discuss opioids with your doctor(s).

..Trevor..

 
 Re: Opioids suggested for refractory arthritic pain
Author: Cher (144.138.225.---)
Date:   04-29-02 10:11

Hey everyone, me again. I just wanted to let you all know that the MS Contin or Slow Release Morphine that I am on has given me so much more independence than before it. I don't know if I have a physical addiction as in most drug dependancies but I do know that my breathing is severely affected & my pain becomes intolerable if I miss a dose or even go a couple of hours without the dose. I haven't experienced any other symptoms by missing a dose ... nothing that wasn't there before the Morphine. I still take Celebrex for the joint inflammation but I know that prior to taking the Morphine & just using Celebrex my joint problems were far more severe. So if you really need to ... See your Doctor & at least get his opinion on Opiods. I don't believe they deserve such a bad reputation.
Cheers everyone ... Stay Positive ... Cher

 
 Re: Opioids suggested for refractory arthritic pain
Author: Gloria (---.proxy.aol.com)
Date:   03-24-04 22:11

Hi cher
I'm new here but not to sarcoid been there four years now. curently I'm on soma, regular Soma not with codine my doctor said he would go ahead and give it to me as I asked but replied " it's addictive" but the muscle pain and spasams were pushing me to the edge so I asked him which was worse

 
 Re: Opioids suggested for refractory arthritic pain
Author: Meg (---.115.74.164.euc.wi.charter.com)
Date:   03-25-04 06:39

Gloria,

The choices your doctor gave you were incomplete. They should have included the Marshall Protocol. Joint pain is a common symptom of sarcoidosis. It will resolve with proper treatment and you will be free of the need for any painrelievers.

Meg

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Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

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