Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-site, or the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but much of it is now out-of-date.

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

 

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


 Main Menu  |  Search  |  Log In   Newer Topic  |  Older Topic 
 Retinoic Acid, Vit A and Beta Carotene
Author: Ken (---.proxy.aol.com)
Date:   05-25-02 14:50

There are current studies and treatment developments involving the use of Retinoic Acid to repair damaged lung tissue from emphysema. Whether this may or may not apply to sarc tissues has not yet been determined. Retinoic Acid is a medically administered form of Vit A. This process is somewhat dangerous if not medically administered and monitored as Vit A is one of the few vits that the body does not regulate the absorption and processing of when introduced as Vit A. Over dose and death can occur. However when introduced in the form of Beta Carotene the body converts into Vit A on an "as needed basis" eliminating the concern of over dose. There are several foods rich in Beta Carotene and even gel caps used to supplement your Vit intake. Your research will show all the applicable benefits beyond sarc concerns. Please discuss with your doctor(s) adding Beta Carotene as part of your treatment regime.

 
 Re: Retinoic Acid, Vit A and Beta Carotene
Author: Admin (---.cu27.vnnyca.adelphia.net)
Date:   05-25-02 15:40

Ken,
For about 10 years I took Beta Carotene 25,000 IU two capsules every 6 hours with Vitamin E 1000 IU. These tended to dull the neuro symptoms, but really had relatively little effect by comparison with the ARBs I have now, which totally suppress all symptoms. I have not taken Beta Carotene since late 1999, when the ARBs came along.

There was no positive change in my X-Ray presentation from 1986-2000, despite the huge doses of Beta Carotene I was taking.

I am very dubious that the extensive (and continuing) lung damage that occurs in sarcoidosis could be compared with that in emphysema.

As you said, Vitamin A and Beta Carotene can both be toxic to the liver, and should only be taken under the supervision of a doctor. In my opinion, the risks were not worth the benefits I obtained. The Beta Carotene did make me feel better, but had no effect on any tissue damage.

But I would recommend that anybody who is considering such a therapy should look closely at adding Vitamin E to the anti-oxidant regime. Professor Alexandre Vizel, of Kazan University in Russia, reports that doctors in Russia routinely administer Vit-E for their sarcoidosis patients.

Keep smiling,
Trevor

 Main Menu   Newer Topic  |  Older Topic 


 Need a Login? Register Here 
 User Login
 User Name:
 Password:
   
 Forgot Your Password?
Enter your email address or user name below and a new password will be sent to the email address associated with your profile.

Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

Go to the Sarcoidosis Information Discussion Info Message Board Forum

Sarcoidosis


Privacy Policy -(C)Copyright 2002-2007 by the Autoimmunity Research Foundation   (email webmaster)
All rights reserved - Powered by Linux and Phorum