Author: Lottie (---.proxy.aol.com)
Date: 10-02-04 19:56
Bob in Michigan,
Have you been diagnosed with Sarcoidosis?
Caroline's exactly right, you are only going to get worse with Prednisone. I was diagnosed with Sarcoidosis in 1999. Profuse sweating, and night sweats were among my symptoms, .
Started with an abnormal echogram of my heart, and multiple symptoms, was placed on Prednisone, and two years later, I had a normal echogram of my heart. About two and one half years later some of my cardiac symptoms were returning, as well as the shortness of breath, and sweating. My most recent echogram of my heart shows the fluid around my heart has returned, and the left Ventricular wall has thickened more than it was on the first one, and my cardiac output is worse. That had me back on the internet, and I found SarcInfo.
I'm now on Benicar, off of Prednisone, have cut all Vitamin D out of my diet, cover up completely and wear my NoIR glasses all of the time. Many of my symptoms have already improved, one of them is that I'm not sweating nearly as much, or as often
I start the Minocin in about a week.
Read as much as you can on this site!! (but put on some sunglasses until you get your NoIR's )
*MODERATOR* Dx- Sarcoid 1999 Heart, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25D 48, 25D 17) (May 05-1,25D 35, 25D-below 5) Pred x5yrs- now off! 5/19 Benicar 10/11 Mino, 1/24/05 modified phase 2, 2/2/06 Phase 2 - Worked as RN until back injury