Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-site, or the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but much of it is now out-of-date.

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

  

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


 Main Menu  |  Search  |  Log In   Newer Topic  |  Older Topic 
 swollen lymph nodes
Author: bigwig (---.ne.client2.attbi.com)
Date:   05-11-02 04:49

I,ve been trying to get information from my doctors on why my lymph nodes been swollen . they have been swollen for sometime even while I,m on prednisone.Is this suppose to change them?Or should there be a biospy done on them
 
 Re: swollen lymph nodes
Author: elaine emmi (---.client.attbi.com)
Date:   05-11-02 08:14

Hello bigwig,

Way back when I was diagnosed in 1976, my lymph nodes were swollen all over my body. It was even tough to walk, everything hurt. It didn't seem to last long but I can't remember now. I never took steroids, so I don't know if the steroids would make any improvements or if it's something your body does on it's own. I had several taken from my lungs for biopsy purpose.

Good luck,
Elaine
 
 Re: swollen lymph nodes
Author: Cher (144.138.225.---)
Date:   05-11-02 09:35

Hi Guys,
I know I seem to stick my nose in just about every subject but this is one that is especially close to me. I was only diagnosed 3 years ago but I have had swollen lymph nodes (or glands) for manyyears. I was finally diagnosed via a biopsy of several of them from my lungs. I have never found a way to reduce them in size or in amount. Sometimes I cannot walk properly coz they r so swollen in my groin, behind my knees, & I have problems using my arms because of them swelling in my arm pits, behind my ears & at the base of my hairline. I have tried Prednisone twice but have a severe intolerance to it & even then it did not reduce the swelling. I think some of us just have them for many years & have to learn to live with it. I am hoping that with remission (which I keep telling myself is on it's way) that will be the end of them.
Stay positive
Cheers ... Cher
 
 Re: swollen lymph nodes
Author: Caroline McGuirl (---.proxy.aol.com)
Date:   05-15-02 13:56

Hi:
I too, have had swollen glands and they appear on and off. Sometimes it hurts to turn your head they ache so much. The doctors always examine for swollen glands when I go for a physical examination. I also get checked because I had a Melanoma removed two years ago. Along with the neck swollen glands I sometimes break out in Canker sores in the mouth....wonder if they are at all connected?
Caroline
 Main Menu   Newer Topic  |  Older Topic 


 Need a Login? Register Here 
 User Login
 User Name:
 Password:
   
 Forgot Your Password?
Enter your email address or user name below and a new password will be sent to the email address associated with your profile.

Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

Go to the Sarcoidosis Information Discussion Info Message Board Forum

Sarcoidosis

Privacy Policy -(C)Copyright 2002-2007 by the Autoimmunity Research Foundation   (email webmaster)
All rights reserved - Powered by Linux and Phorum