Author: Lottie (---.proxy.aol.com)
Date: 03-17-06 01:14
Chaka,
Welcome to SarcInfo.
Sarcoidosis is a systemic disease that can affect any and all organs in your body. It generally affects several areas of the body.
We now know that Sarcoidosis is caused by Cell Wall Deficient (CWD) bacteria. The Marshall Protocol is the only treatment currently in use that can help your immune system to kill the CWD bacteria. The standard treatments such as Prednisone and other immunosuppressants will only allow the bacteria to flourish, and multiply, without anything to kill them.
I’m guessing that they learned that you had Sarcoidosis by the pathology report from the surgery. Since you have “biopsy proven” Sarcoidosis, you don’t need another biopsy to confirm the presence of Sarcoid in your system. Shortness of breath and a chronic cough are very common symptoms of Sarcoidosis. A chest x-ray will not always show any evidence of Sarcoidosis even with shortness of breath, and abnormal PFT’s. Your “hilar fullness” may indicate that your lymph nodes are enlarged.
People with a Th1 disease, of which Sarcoidosis is only one, are unable to regulate the production of vitamin D. If you look at the list of HYPERVITAMINOSIS-D SYMPTOMS you may recognize many of the symptoms on the list. (hypervitaminosis D refers to an excess of 1,25D, not the 25D that most doctors test for when they test for “vitamin D”)
The next time that you have blood tests done, you should have your doctor order the D metabolites tests and others as noted here... D METABOLITES TESTS. Read the information about the proper handling of the specimen. Be SURE THAT THE LAB KNOWS THAT THE 1,25 D SAMPLE MUST BE KEPT FROZEN as soon as it is "spun down", and then kept frozen while in transit and until testing is done.
When you get the results, please obtain a copy, and post the actual numbers from the results on our sister site, Marshall Protocol.com in the thread named ”Preliminary test results”, and we will help you evaluate them for your doctor. Please read the information which is listed in the first post “WHAT to INCLUDE in your preliminary test result reports”, and include the requested information along with your results. You will be starting your own thread in that section. You can let us know here on SarcInfo if you have any problems starting your own thread there.
Don’t accept the term “normal range” for the results, you want the actual numbers. Even what is considered “normal”, or even low, can indicate Th1 inflammation. This will help to give you an idea of how much inflammation that you have going on in your body.
There is information at our sister site MarshallProtocol.com about diagnosis and the standard treatments of SARCOIDOSIS.
You may find that you will start to feel better by avoiding vitamin D in foods, and supplements. The most obvious sources of vitamin D are eggs, fortified dairy products, fish, fish oil, and liver. You should also read the packaging on products to be sure that there is no vitamin D added.
FOODS TO AVOID
Testimonials to the need to avoid ingested Vitamin D
FOOD TIPS
Beginning to avoid sunlight now, which is also part of the MP, may also help you start to feel better sooner.
THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS
The effect of light on the brain (amygdalla)
AVOIDING SUNLIGHT and BRIGHT LIGHTS
INCIDENT RADIATION TUTORIAL
I will be sending you additional information in an email. Let us know if you have any questions about implementing the MP.
Lottie 
*MODERATOR* Dx- Sarcoid 1999 Heart, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25D 48, 25D 17) (May 05-1,25D 35, 25D-below 5) Pred x5yrs- now off! 5/19 Benicar 10/11 Mino, 1/24/05 modified phase 2, 2/2/06 Phase 2 - Worked as RN until back injury
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