Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-sites of the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but most of this site is now out-of-date.

 

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

  

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


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 ***** MEDICAL ABBREVIATIONS *****
Author: Meg (---.188.244.147.euc.wi.charter.com)
Date:   02-23-03 19:34

abx: antibiotics
ACE: Angiotensin Converting Enzyme
ACTH: adrenocorticotropic hormone
ad lib: as desired
AI: autoimmune
ALT: alanine aminotransferase (a liver enzyme)
asap: as soon as possible
AST: aspartate aminotransferase (a test for heart/liver function)
ANA: antinuclear antibodies (test for SLE)
ARB: angiotensin receptor blocker

BAL: bronchoaveoloar lavage
BCG: Bacille de Calmette-Guerin
bd: two times a day
bid: two times a day
BMD: bone mineral density
BMJ: British Medical Journal
BP: blood pressure
BS: blood sugar
BUN: blood urea nitrogen ( kidney function test)

CBC: complete blood count
CFS: Chronic Fatigue Syndrome
CFIDS: Chronic Fatigue, ImmunoDeficiency Syndrome
CRP: C-Reactive Protein (monitors generalized inflammation)
CPK: creatine phosphokinase
CT: cat scan or computerized tomography
CMV: Cytomegalovirus
CWD: cell wall deficient
CXR: chest xray
CYA: cover your (posterior) anatomy

DMARD: disease modifying anti-rheumatic drug
DO: Doctor of Osteopathy, equivalent to an MD.

ECG: electrocardiogram (also EKG)
ENT: ear, nose, throat
ESR: erythrocyte sedimentation rate

FDA: Food and Drug Administration
FEV: forced expiratory volume
FWIW: for what it's worth

GI: gastrointestinal
GP: General Practitioner

hgb: hemoglobin
HTN: hypertension
HX: history

iu: international unit
ID: infectious disease

JRA: Juvenile Rheumatoid Arthritis

LLMD: Lyme-literate Medical Doctor

ME: myalgic encephalomyelitis
mg: milligram
ml: milliter
MCS: Multiple Chemical Sensititvity
MTX: methotrexate

NIH: National Institutes of Health
NP: nurse practitioner
NSAID: non-steroidal antiinflammatory drug (examples ibuprofen, naprosyn)
OTC: over the counter

PCP: Primary Care Provider
PCR: polymerase chain reaction
PFT: pulmonary function test
prn: as needed
PTH: parathyroid hormone
PWC: people with chronic disease or fatigue (CFIDS)

qid: four times a day
qod: every other day
q8h: every 8 hours
q72h: once every 3 days

RDA: recommended daily allowance
Rx: prescription

sACE: serum angiotension converting enzyme
sSIL2R: serum soluble interluekin-2 receptor
SLE: systemic lupus erythematosus
SOB: short of breath (dyspnea)

tid: three times a day
tds: three times a day
TNF: tumor necrosis factor
TPTB: "The Powers That Be"
tx: treatment

UA: urinalysis


Medical abbreviations not found here may be located at medi-lexicon.
 
 Re: bacteria
Author: Lynn (---.lifespan.org)
Date:   09-05-03 11:56

Is this really true? My doctors have not said anything about taking antibiotics! I have been on prednisone for 5 years and I keep having flare ups every once and awhile. I have been to speacialist and they have never mentioned it either. what is going on!
 
 Re: ***** MEDICAL ABBREVIATIONS *****
Author: Admin (---.vnnyca.adelphia.net)
Date:   09-05-03 12:06

Lynn,
Many Doctors and specialists have been fingering bacteria as a cause of Sarcoidosis dating back to Virginia Livingstone's pioneering work in the 1960s.

Most recently you even have Professor Sharma writing "Sarcoidosis may arise from a Th1 immune response to one or more antigens of propionibacteria in an individual with a hereditary or acquired abnormality of the immune system"

A study published in the CDC's "Emerging Infectious Diseases" late last year identified mycobacteria as another component.

But for some reason these doctors were not able to figure out how to kill the bacteria - they could not figure out all the variables. We have done that.

Welcome to SarcInfo. Please read the tutorials and papers at the top of the page and also the discussion threads, and print the important ones out to discuss with your Doc. Note especially the FAQ document and be always wary of the Jarisch-Herxheimer shock...

..Trevor..
 
 Re: ***** MEDICAL ABBREVIATIONS *****
Author: Karen Stewart (---.psc.gw-cncx.com)
Date:   03-04-04 07:25

Dear Meg Mangin
Received your e-mail on the Marshall Protocol, and was very happy to see there is a light at the end of the tunnel.

I have printed up what you sent me to give to my Pulmonary Doctor, like I said in an earlier message, I am on a pulmacort, which I don't know if it is doing any good.

My right hip side has been hurting for about a year I've seen doctors on this matter and had x-rays taken but they could not find anything. I was wondering if the sacoid had anything to do with that? If I sit with my legs crossed for a minute or two, when I get I the pain the stiffness in my hip hurts pretty bad.

But other then that I feel ok, I have no problem going up stairs, and I work out and feel great doing so. One other problem, I've been developing a single evenly round bruse one at a time on different parts of my body, blood test of all kinds has been taken, but nothing has been found, the bruses don't hurt and they diminish as the days go on. Would that have anything to do with my problem?
 
 Re: ***** MEDICAL ABBREVIATIONS *****
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   06-27-04 23:46

To all,

You might find this resource useful for looking up an acronyms you can't decipher.
Medical Lexicon

Belinda
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This is an archive site, membership and posting are no longer allowed.

Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

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