Author: Lottie (---.proxy.aol.com)
Date: 06-03-06 15:16
Your 25D is borderline high, and indicates that you have been eating foods with vitamin D, and/or taking supplements containing vitamin D. You will want to diligently avoid all sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see:
THE IMPORTANCE OF AVOIDING VITAMIN D AND FOLIC ACID
FOODS TO AVOID
Testimonials to the need to avoid ingested Vitamin D
The 25D being as high as it is makes the D ratio inaccurate.
Your 1,25-D of 40 pg/ml is 1.16 sigma high. Based on population studies, 87.70% of the population would be expected to have a lower number. It is not above the Merck Physicians Guide maximum of 45pg/ml, but the 1,25D level can fluctuate rapidly, and be affected by how the sample is handled, as it decays rapidly if not handled properly. It is close to 42 pg/ml, and at levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts (http://tinyurl.com/dp7a9), causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, muscle bundles (Fibromyalgia) and the kidneys (where it forms kidney stones). A Review - Vitamin D and Calcium in Sarcoidosis
With your apparent cardiac involvement, I would actually expect your 1,25D to be higher that the test has shown. Diovan is an ARB, in the same family as Benicar, and may also have reduced the level of your 1,25D. However, 40 pg/ml is indicative of th1 inflammation, and that the MP will help you to get well.
Did you ask the laboratory if they froze the sample after it was spun down prior to the test being run? Handling “properly” does not mean that a lab’s policy is to freeze the sample for the 1,25D test. And, often, the technicians are used to handling the 25D and don’t realize that the 1,25D needs to be frozen. I remind them EVERY time I have a 1,25D test done, as the first time I had it done, I overheard part of a phone conversation that the technician had with the lab manager, who told the tech that it didn’t need to be frozen. The tech called a different section of the lab who looked it up, and told the tech that it did need to be frozen after being spun down until tested.
The ACE test is not significant in the diagnosis of Sarcoidosis unless it is high. Many people, such as myself, have never had an elevated ACE even with biopsy proven Sarcoidosis.
There is information at our sister site MarshallProtocol.com about diagnosis and the standard treatments of SARCOIDOSIS.
What do my lab tests mean?
Elevated cholesterol also indicates that there is inflammation going on.
You don’t want to take any medications with HCT in them, as you may have unidentified kidney involvement with the th1 inflammation, and the HCT puts additional stress on the kidneys.
MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL
Even though Diovan is an ARB, Benicar is the one you need to be on while on the MP.
How does Benicar work? Why is it superior to other ARBs?
Where can I learn about Benicar used for applications beyond anti-hypertension?
Prednisone may reduce the inflammation initially. However, it will allow the Cell Wall Deficient (CWD) bacteria that causes th1 inflammation to flourish with NOTHING to stop them. Prednisone is contraindicated in a person with a bacterial infection as it stops the immune system from functioning.
An echocardiogram done at the time of my Sarcoidosis diagnosis showed that there was inflammation going on in my heart. After I was on Prednisone for about three years an echocardiogram showed that the inflammation was gone. Another year and a half later, while still on Prednisone, I started to have my cardiac symptoms again – PVC’s, shortness of breath, tachycardia, palpitations. An echocardiogram done at that time showed that the inflammation was back, and was worse than when I was diagnosed. In addition, my cardiac output was then reduced. That doesn’t include the other problems that Prednisone can cause. I can assure you that you do not want to be on Prednisone, and I urge you to find a doctor who will treat you with the MP!
WEANING FROM STEROIDS
Since about the time that I was about midway through the modified Phase Two of the MP, I now have fewer cardiac symptoms than I have had for years! And, I have had cardiac symptoms since 1969. I was diagnosed with Mitral Valve Prolapse (MVP) around 1978. I have since learned that MVP can be caused by inflammation.
Beginning to avoid sunlight now, which is also part of the MP, may also help you start to feel better sooner.
THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS
The effect of light on the brain (amygdalla)
AVOIDING SUNLIGHT and BRIGHT LIGHTS
INCIDENT RADIATION TUTORIAL
Be sure that you have your NoIR sunglasses before you start Benicar. PROTECTING YOUR EYES Where to purchase NoIR and Bolle 100 sunglasses.
Let us know if you have any questions about implementing the MP.
*MODERATOR* Dx- Sarcoid 1999 Heart, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25D 48, 25D 17) (May 05-1,25D 35, 25D-below 5) Pred x5yrs- now off! 5/19 Benicar 10/11 Mino, 1/24/05 modified phase 2, 2/2/06 Phase 2 - Worked as RN until back injury